Welcome to Cranio Ribbons Ireland!
WhWaWho is Cranio Ribbons Ireland, and what do we do?!
Cranio Ribbons Ireland is a group set up by Elizabeth Kane, a mother of a child with craniosynostosis, to raise awareness of the condition Craniosynostosis and be a support group to Parents who have diagnosed children or for adults who are diagnosed themselves!
This website is a place where parents can get information of the condition Craniosynostosis, they can also become familiar with the cranio facial surgeon, Dr.Dylan Murray, who performs the surgery to correct Craniosynostosis.
Craniosynostosis awareness month!!
September
We have an awareness page on Facebook where we share info pics and awareness posts, we also have competitions and page giveaways!
As we are a support group, we also have a private page on Facebook where you can share you worries and concerns, or just if you feel like you need somone to listen.
There are links to the private page on www.facebook.com/cranioribbonsireland
During the month of september, we work hard to spread awareness of Craniosynostosis!
We have give aways and competitios and we try to get our followers to interact with the page as much as possible!
Here are links to Dr.Dylan Murrays websites!
Thought chains:
we make home made wish chains to send a child some good thoughts as they face their surgery. The chains are free, as we make them based on the public donations. If you wish to have a wish chain made for your child before surgery, please feel free to ask, either email cranioribbonsireland@gmail.com
Check out the American craniosynostosis website: